YODAA - Resources

While YODAA seeks to provide support to all its members, it can't do it alone. The following are various resources that may help provide information about your diagnosis or information about ostomies and diversions, in general. If you have a resource that you would like to share with YODAA, please contact us, and upon review, we will add your resource to our list.

Support Groups

  • Southern California Support Groups

  • Massachussetts

  • Washington State

    • Greater Seattle Ostomy Association

      Point of Contact: Esten Gose
      Meeting Day/Time: Second Tuesday, every month, 7PM - 8:30PM
      Next Meeting: October 14th, 2008
      Location: Swedish Medical Center, 747 Broadway, Seattle, WA
      Detail Level B, Conference Room #2, across from the Market Café

    • Snohomish County Chapter

      Point of Contact: Esten Gose
      Meeting Day/Time: Third Wednesday, every month, 7PM - 9PM
      Next Meeting: October 15th, 2008
      Location: First United Methodist Church, 3530 Colby Avenue, Everett, WA

General Links

United Ostomy Associations of America (UOAA)

  • List of support groups (for support – also potential Rally sponsors)
  • “Phoenix” magazine published 4 times a year (free trial issue available)
  • Discussion Boards for Teens, Parents, those with continent diversions, other
  • YODAA is an Affiliated Support Group (ASG) of the UOAA

International Ostomy Association

United Ostomy Association of Canada

Milwaukee Young Adult Ostomate Diversion Alliance of America

  • Milwaukee Regional Chapter of YODAA
  • Special thanks to MYODAA for help with content, including links

Meet An Ostomate - Dating service for ostomates.

Shaz's Website - An interactive support page for new and experienced ostomates.

American Gastroenterological Association - Advancing the Science and Practice of Gastroenterology

Cleveland Clinic - National top four for hospitals with emphasis in colorectal surgery

Wound, Ostomy & Continence Nurses (WOCN)

  • Professional Society for nurses who specialize in these fields
  • Locate a nurse near you

Social Security and Disability

Diagnosis-Specific Links

Cancer

The American Cancer Society

The Colon Club

Exstrophy

Association for the Bladder Exstrophy Community (ABC)

Familial Adenomatous Polyposis (FAP)

FAP Support

Hirschsprung's Disease

Hirschsprung's Disease Information

IBD - Crohn's Disease and Ulcerative Colitis

Crohns & Colitis Foundation of America (CCFA)

IBS Crohn's - Excellent website for info

J-Pouch Support and Information

Red Lion Group - The UK charity for people who have, or are considering having, a J-pouch operation

Spina Bifida

Spina Bifida Association (SBA)